[livingwith]

I feel as though this disorder has taken my life as I knew it away from me. I am disabled now. I can’t drive, can’t work, and am lucky on the days that I can walk with a cane without assistance. I am on medication but it doesn’t seem to help very much. Most days I am so weak it is all I can do to get up and do much of anything. I have really bad episodes of EDS where I cannot stay awake not matter what I try.
Also, I have moderate to severe problems with cataplexy on a dai...Read the full article